Halloween doesn’t have to be a difficult day for kids in wheelchairs. I always loved being challenged to come up with a costume that incorporated, or dare I say, disguised Ben’s wheelchair.
I’m not a wallower.
Never have been. And we’ve had a pretty difficult last few years – from managing a premature birth and a five-month NICU stay to a child with significant needs, caring for triplets, dealing with child loss, trying to figure out this new life. I probably have plenty to be angry about, as many others do in this world. And I am angry. And some days I do wonder ‘why me?’ But …we are also Blessed.But instead of waste
Yesterday I received a few thank-yous in the mail from students at the local high school after a visit to their childhood education classes recently. When I was first invited, I accepted quickly but then thought to myself, “what will I talk about with high school students?”
As I’m sitting here writing this, today is April 30, 2018, just two days before the second anniversary of Ben’s death. Benjamin died on May 2, 2016 at about 11pm in Lurie Children’s PICU in Chicago. This sounds so trite, but I can’t believe it’s already been two years.